Risk and protective factors of depression among caregivers of children with disabilities in rural Rwanda
Clinical Snapshot
PICO Framework
| P — Population | Primary caregivers of children aged 12-36 months with developmental delays in rural Rwanda (n=309) |
| I — Intervention | Various sociodemographic and household characteristics (economic hardship, food insecurity, caregiver illness, family unity, intimate partner violence) |
| C — Comparator | Caregivers without these risk/protective factors |
| O — Outcomes | Depression scores measured by validated screening tool with clinical cut-off |
Bottom Line
This cross-sectional study of 309 caregivers in rural Rwanda found an alarming 65% prevalence of likely depression among those caring for children with developmental delays. Economic hardship, food insecurity, and caregiver illness significantly increased depression risk, while family unity was protective. Intimate partner violence showed strong associations with depression. The findings highlight the critical need for integrated approaches that address both child disability services and caregiver mental health. While the rural African setting may limit direct generalisability, the principles apply to disadvantaged populations globally. Clinicians should routinely screen caregivers of children with disabilities for depression and consider socioeconomic factors in treatment planning. The study's cross-sectional design limits causal inference, but the large effect sizes and biological plausibility support the clinical relevance of these associations.
Key Findings
P Value: Economic hardship p<0.001, Food insecurity p<0.01, Family unity p<0.001
Effect Size: Economic hardship β=0.158, IPV β=0.306, Family unity β=-0.013
Primary Outcome: 65% of caregivers met clinical cut-off for likely depression
Nnt Or Sensitivity: Depression prevalence 65% vs general population baseline not provided
Confidence Interval: Not reported in abstract
Clinical Application
Screening tools appear feasible for clinical use. Interventions targeting economic support and family unity are implementable Relevant for Indigenous communities and disadvantaged populations. NDIS participants' families may benefit from mental health screening. GP Mental Health Care Plans could incorporate caregiver assessment Caregivers of children with developmental disabilities, particularly in resource-limited settings
Abstract
BACKGROUND: Caregivers of children with disabilities are at increased risk of experiencing poor mental health due to the compound effects of financial and family stressors. This study aims to identify risk and protective factors for poor mental health, particularly depression, among caregivers of young children with disabilities. METHODS: This is a secondary data analysis, including a total of 1518 caregivers who were enrolled at baseline in a cluster randomised trial evaluating the effects of Sugira Muryango, a home-visiting parenting intervention, on early child development and violence prevention outcomes. A total of 309 primary caregivers were identified as having a child aged 12-36 months who screened positive for some form of developmental delay. Associations between key sociodemographic and household characteristics and depression outcomes were explored using multivariable linear regression models. RESULTS: Among the sample of caregivers of children with disabilities, 65% met the clinical cut-off for likely depression. Economic hardship (β=0.158, p<0.001), food insecurity (β=0.009, p<0.01) and caregiver illness (β=0.183, p<0.01) were significant risk factors for depression. In contrast, family unity (β=-0.013, p<0.001) was an important protective factor for depression among these caregivers. Among married/cohabiting caregivers, intimate partner violence (IPV) was associated with higher mean depression scores (β=0.306, p<0.001), though the inclusion of family unity in the full model (inclusive of risk and protective factors) attenuated the impact of IPV on depression. CONCLUSIONS: Programmes targeting children with disabilities should also address the mental health needs of parents. Mental health difficulties are common for caregivers living in poverty, especially those raising a child with a disability or developmental delay. Additionally, parenting programmes that reduce family violence and build family unity should be prioritised by policymakers interested in improving the mental health and well-being of families facing extreme poverty.
References
- 1.Ahishakiye, A., Dal Santo, L., Smith Fawzi, M. C., Miller, A. C., Placencio-Castro, M., Gilbert, H., Jensen, S. K. G., Wilson, K., Kirk, C. M., Sezibera, V., & Betancourt, T. S. (2026). Risk and protective factors of depression among caregivers of children with disabilities in rural Rwanda. BMJ Global Health, 11(4), e020491. https://doi.org/10.1136/bmjgh-2025-020491
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