Development and acceptability of a patient decision aid for people with degenerative cervical myelopathy: an international mixed-methods study

Clinical Snapshot

Key Findings

• Effect Size: Not applicable (acceptability study)

• Primary Outcome: Most participants rated the decision aid's acceptability as good-to-excellent

• Nnt Or Sensitivity: 32 interviews conducted (19 patients, 13 health professionals) across 10 countries

• Confidence Interval: Not reported

Clinical Application

High feasibility as decision aid designed for clinical use with positive acceptability ratings from both patients and clinicians Highly relevant to Australian practice - study included Australian participants and addresses shared decision-making consistent with RACGP guidelines and patient-centred care principles Adults diagnosed with degenerative cervical myelopathy considering surgical intervention

Abstract

OBJECTIVES: To develop and user-test a patient decision aid for people diagnosed with degenerative cervical myelopathy and who are considering surgery. DESIGN: Mixed-methods study describing the development of a patient decision aid. SETTING: A draft decision aid was developed by a multidisciplinary steering group (including study authors with degenerative cervical myelopathy, health professionals and researchers) informed by the best available evidence, authorship consensus and existing patient decision aids. PARTICIPANTS: Patient-participants and health professional-participants who manage people with degenerative cervical myelopathy were recruited through social media and the steering group's research and practice network. Quantitative questionnaires were used to gather baseline data, descriptive feedback, refine the decision aid and assess its acceptability. Qualitative semi-structured interviews were conducted online to gather feedback on the decision aid and were analysed using reflexive thematic analysis. RESULTS: We conducted 32 interviews: 19 patient-participants and 13 health professional-participants who manage people with degenerative cervical myelopathy (neurosurgeons, neurologists, physiotherapists, orthopaedic surgeons, general practitioners, rehabilitation and pain specialists and consultant occupational physicians and chiropractors). Participants were from 10 countries (Australia, Canada, Cyprus, Germany, Ireland, New Zealand, Sweden, Switzerland, United Kingdom and USA). Most participants rated the decision aid's acceptability as good-to-excellent and agreed with most aspects of the decision aid (eg, defining degenerative cervical myelopathy, management recommendations, potential benefits and harms, questions to consider asking a health professional). CONCLUSION: Our patient decision aid was rated as an acceptable tool by both health professional-participants who treat degenerative cervical myelopathy and patient-participants with lived experience of degenerative cervical myelopathy. This decision aid can be used by clinicians and people with degenerative cervical myelopathy to help with shared decision making following a diagnosis of degenerative cervical myelopathy. A study testing the potential benefits of this decision aid in a clinical setting is recommended.

References

1. 1.Gamble, A. R., Anderson, D. B., McKay, M. J., Davies, B., Macpherson, S., Van Gelder, J., Hoffmann, T., McCaffery, K., Stevens, S. X., Ammendolia, C., Chauhan, R. V., Zipser, C. M., Boerger, T. F., Tetreault, L. A., Fehlings, M. G., Dustan, E., Nugent, C., Holmgren, H., Demetriades, A. K., Lantz, J. M., Dhillon, R., Maher, C. G., & Zadro, J. R. (2026). Development and acceptability of a patient decision aid for people with degenerative cervical myelopathy: an international mixed-methods study. BMJ Open, 16(4), e106337. https://doi.org/10.1136/bmjopen-2025-106337